Diary Entry # 1 (July 30th)
My day today has been horrible, what can I say I have had to do a lot of things but there is no time to do them, I have to fight for a lot of things but there is no time to do them. I hate the fact that I have to do a lot of things, school stresses me out, we barely have any time to do anything but we still have to do things without the help of anyone. I have fantasized about what I have wanted to do and this is it you know I don’t have time to write a Blog, I don’t have time to do homework and I have no time to waste but anyways I have to fulfill my obligations and do what I am supposed to do even if I don’t want to.
Today is Ale Fahsen’s Birthday, so I went to her house, but the fact is that all day today I had to hand in things that I had to do before I went to the trip, I had to finish my Seminario Project and leave everything in order so that my group could hand it in and not have to worry about anything, I have been running form one place to the other, trying to get all my homework finished before leaving Guatemala. I have to hand in a Math homework and a Contra homework tomorrow, but since I’m not going to go to school tomorrow I had to leave it with someone so that they could hand it in for me, I left it at Ale’s house so that she could hand in my homework, but it was all too much, when I got back home I had to pack because since I had been busy all week long I hadn’t packed, so I went to sleep like at 11 p.m. today just so that I could finish all the things that I was supposed to do before tomorrow, oh what a day!
Diary Entry # 2 (July 31st)
Today I woke up early and with a hole lot of things of my mind, today I left for trip and I was worried about al the things that I would have to do to when I got back from the trip. I am a very stressed person and I just have a constant thing on my back that reminds me of all the things that I haven’t done. It is hard for me to think clearly and not to worry when I know that I should be at school or doing something.
Anyways, I got to the airport and eventually I got on the plane without any event happening, I spent all my day on planes and eventually I got here to this hotel in which I got ready for bed, and I am writing here right now typing away what I did on my day.
However, one of the things that I did today was watch two movies during the flights, these movies were “The Spiderwick Chronicles” and “Nim’s Island” they were both good and both for children, but they were good you know, at least they entertained me.
Tomorrow, an interesting day awaits, because I will finally get to see a lot of people that are sick like I am; I don’t know what I will think, but I am open minded about everything right now. To be honest I am a little scared, but you know what it will be a good experience for me and for my life. I hope that everything goes great tomorrow, and also I hope that my friends back home win on the Interaulas game in school. GO QUINTO!!!!! I am crossing my fingers here for you guys….! I miss them and I didn’t want to leave, but I had to so I hope that this event is worth it and that I end up learning a lot.
Diary Entry # 3 (August 1st)
OI Convention Day 1
So yesterday I got to the Hotel and I got everything in order, I felt all my clothes ready for today and I was just really tired, when I woke up I barely had any energy and I was so tired, I showered and went to have some breakfast with my parents, then we saw the schedule for the conference and we went to the first talk with is like and introduction to what the conference will be about and what things were going to be mentioned and what talks there were going to be, you could ask questions and get oriented for the rest of the event.
We went to some talks that day, since there are different types of OI, there are different talks at the same time, so you have to choose between which ones are of more interest to you, we all went to the “Growing up with OI Type 1″, it was a really interesting talk that you know you could ask questions about what you wanted to know and the Doctors would answer, I feel that this talk was a really good one and it got something out in the air for me, but at the same time it was a scary moment for me because I didn’t know how to handle the feelings that I was having when I heard some of these things, I saw some people and heard what they had to say and I could only think that my brother and I have an uncertain future, I cant plan things way ahead of me because it might not be possible to do at that age.
After some other talks we went to have lunch and when the last talk of the day was over, we left for the mall, we took the Metro and had a fun time buying the metro cards, but we managed to get to Pentagon City, where the nearest mall was, and we went in an did some shopping, and my dad and I saw a man who was caught by the mall police for tying to steal some clothes that someone had bought. It was a real interesting day and it was definitely not boring.
Diary Entry # 4 (August 2nd)
OI Convention Day 2
I was the first to wake up Today because I was really scared that we would not get to any of the talks in time, we were all very tired and we didn’t want to wake up so early. We didn’t even have time to have any breakfast because we had to get to the first talk of the day, some of the most interesting talks of the day were one where a Geneticist talked about the advances of research that they had made, they found three more types of OI which are recessive and which are very rare in people, the people that are born with these types most probably will die after birth or after a year or two.
It is shocking to see some of these people who are really sick and who have a really hard time living, but who have a huge spirit and who live with such a high spirit that I just you know was amazed and really moved, I loved these people and I had a real respect for them, they were there and they were living their life like if they had nothing. It was a really great day and you know I did learn a lot form the talks, it was over all a good day.
When the sessions were over, we wento to another mall, it was really far, but it was a mall none the less and you kno wi bought some shirst and some books so it was all good. We had dinner at the mall’s food court and then we left because we had to catch the last metro back, we got there in time and we got to the hotel at like 12:00, I was really tired, but I stayed up late watching an episode of “Sex and the City”.
Diary Entry # 5 (August 3rd)
OI Convention Day 3
Today was the last da y of the convention, there were very little sessions and we went to a session that was asking the doctor questions about people with OI Type 1, it was good, but my mom wanted me to ask a lot of question that I in the end did not want the answer of. I didn’t ask the questions so I think my mother got mad but what could I do.
Then we went to a Tea Event, where they told us that we could donate money by having a cup of tea sent to someone, e want to take part in it so we have to plan it with my parents. It is really good that there are things like these that help out the foundations to gather funds for research.
We went to the closing event, were there were singers and you know some kids with OI singing, it was very good and I thought they were good singers. Then the closing dinner was this day, and of course we went it was a really good place and in fact for me it was great because I met a girl with OI from Puerto Rico, she introduced me to a lot of other people that she had met during the conferences and you know I fell in love with some of them, it was great and I really am looking forward to another conference just so that I can see these people and talk to them.
I was sad because I met them the last day, and probably I could have made more friends, but it was my first time there and I was kind of scared that people would look at me in a bad way, because I don’t look like if I were sick.
Diary Entry # 6 (August 4th)
Washington Touring Day 1
This was the day that I had been hoping for, since the beginning of the trip, I was so tired in the morning but I did get up and ready and we went on our first day of touring Washington, I fell in love with this city and I think that I want to live here forever. It was just so great to see everything.
We went on a tour of the monuments and we say the capitol, Washington Monument, Lincon Monument, The Cathedral, White House, FBI, Ford Theater, IRS, Georgetown, etc. It was just so great, and we also went to some museums this day, we went to the Smithsonian Space and whatever museum and we went to my favorite place of the day, The National Achieves. It was just so great I was so exited about the Archives; we saw the Magna Carta, Bill of Rights, Declaration of Independence, and Constitution. I was soooooo excited about this.
Since all the museums closed at about 7:00 p.m. later that day we saw a band and a group of singers of the Navy that were having an event in the Navy Monument, it was really great and we had a good time we went to eat at a really nice restaurant that day and it was al just so incredible that I was very happy about all the things that I got to do that day. I loved Washington and I would love to live here.
Diary Entry # 7 (August 5th)
Washington Touring Day 2
The last day in Washington was a really sad one for me because I didn’t want to leave. I could barely get up from the bed because I was so tired from all the walkig that we had done the previous day. We went to the city again and we went to the Capitol, we went on the tour inside of the Capitol and it was awesome, I loved it it had paintings and it was like a work of art everything was so detailed and so great. I also saw the House of Representatives in Action and we say some representatives talking about oil issues, then we also saw the Senate, but they were not working so we only saw the old senate offices. It was juts so surreal for me, I was like a child on a playground.
This day we also went to the Botanical Gardens and to the Spy Museum, which was kind of fun, but not the best thing ever. We went to dinner with some friends from Quito who have a girl with OI, we went to eat at Hard Rock Café and we had a really nice time, it was so much fun. I had a great day and I was really sad that the next day we had to leave from Washington. I didn’t want to go, but anyways I had to. All I can say is that my trip was awesome and full of great experiences.